“We tend to stay away from mourning and dancing. Too afraid to cry, too shy to dance…we become narrow-minded complainers, avoiding pain and also true human joy…While we live in a world subject to the evil one, we belong to God. Let us mourn, and let us dance.”
HENRI NOUWEN, Suffering and Joy
Cody met his favorite musician at a 5:30 pm Q&A one night before a show. We attended only the Q&A because the show itself was past Cody’s bedtime. Staying up too late triggers his seizures, so we are very strict about bedtime.
When I emailed the singer, Jason Gray, a month later, he remembered us and agreed to play a concert for us as a fundraiser for epilepsy. He remembered us after the Q&A specifically because we hadn’t been able to stay for the show.
Epilepsy prevented us from attending his show; epilepsy made us stand out to him.